Parenting Weekly (a.k.a. Baby Weekly) - A brief introduction to newborn screening for new or expecting parents.

The March of Dimes: An excellent source of information about Newborn Screening for both parents and professionals.

The American College of Medical Genetics. Includes “Act” sheets with information on what doctors should do when a baby screens positive for a rare condition, as well as information about specialists and regional collaboratives.

The Save Babies Through Screening Foundation: A national nonprofit public charity run by volunteers with a mission to prevent disabilities and early death resulting from disorders detectable through newborn screening.

The International Organization of Glutaric Acidemia (IOGA): An international non-profit organization dedicated to promoting newborn screening, prevention of neurological damage, treatment and rehabilitation for those affected by Glutaric Aciduria Type I and other neurological diseases.

Fatty Oxidation Disorder Communication Network: Information about newborn screening and support for parents of children with metabolic disorders.

An excellent source of information about Expanded Newborn Screening using MS/MS for parents and for health professionals.

The National Newborn Screening and Genetics Resource Center: General information for heath care professionals about newborn screening and genetic testing.

The Mountain States Genetics Network: Medical genetics information and resources for health care practitioners, patients and caregivers.

Oregon Dept. of Health MS/MS Screening Fact Sheets: Detailed information for health professionals from the Northwest Regional Newborn Screening Program (NWRNSP).